Legal Notice and Privacy Policy

LEGAL NOTICE AND WEB PRIVACY POLICY

For the purposes of article 10 of Law 34/2002, of 11 July, on Services of the Information Society and Electronic Commerce, the user is informed that the owner of the website is the Fundació MSD – Dèficit Multiple Sulfactasa (hereinafter , Fundació MSD), with its registered office in Sant Marc Street, 116 de Terrassa (08224), provided with NIF No. G67305821, with email info@curamsd.org, and which is registered in the Registry of Foundations of the Generalitat of Catalonia, with number 9999, as of 24/11/2018.

Data protection 

For the use of certain services, the user must communicate data of a personal nature. The Fundació MSD shall inform the user of each of the data treatments carried out in accordance with articles 5 and 6 of the Organic Law 15/1999 of 13 December on the Protection of Personal Data, thus complying with the duties of information and consent Respectively. The FUNDACIÓ MSD is responsible for the treatment of these data. To exercise your rights of access, rectification, cancellation and opposition, you must direct a letter together with a copy of the DNI to the FUNDACIÓ MSD (Calle Sant Marc, 116 – 08224 Terrassa), or send an email to info@curamsd.org.

Likewise, we inform you, regarding the subscription to the newsMSD, that, in accordance with the provisions of Law 34/2002, of 11 July, on Services of the Information Society and Electronic Commerce, you can revoke at any time your consent to Receive commercial communications by sending an email with the subject "Low newsMSD"a the address info@curamsd.org.

Use and service of the website

The user can choose in which language (Catalan, Castilian or English) wants to accede to the contents of the Web, as well as to the management of all the services that are offered.

The user undertakes to make diligent use of the Web site and the accessible services, and not to use the services or information that are contained to develop activities contrary to the laws, morals and good manners, and public order. , and, in general, to make use in accordance with this legal notice.

The FUNDACIÓ MSD may temporarily or definitively terminate, at its discretion, access to the website, as well as the provision of any service or of all those provided, at any time and without prior notice.

Intellectual Property Rights

The FUNDACIÓ MSD owns the intellectual and industrial property rights of all the contents of this website. In any case, the FUNDACIÓ MSD has the corresponding authorisation to give the use that it creates convenient to its contents.

 Reproduction, except for private use, Is strictly forbidden to make available to the public and in general any other form of exploitation of all of the contents of this website or of a party, as well as of its design. These acts of exploitation can only be carried out by means of the express authorisation of the FUNDACIÓ MSD and provided that explicit reference is made to the ownership of the FUNDACIÓ MSD of the aforementioned intellectual property rights.

Limitations of liability

The FUNDACIÓ MSD does not guarantee to the user the availability, access or continuity in the connection to the Web site and in the supply of information or any of the different services that are offered. Consequently, the FUNDACIÓ MSD and any possible content providers are not responsible for possible interruptions in the service, delays, malfunction and, in general, any inconvenience that has its origin in causes beyond the control of the FUNDACIÓ MSD or the suppliers, or comes from a fraudulent or negligent act of the user, or force majeure. The FUNDACIÓ MSD also does not guarantee the usefulness, obtaining of results or infallibility of all the contents facilitated through the Web site, that in any case they are orientative and informative. The above information has been obtained from sources considered reasonably reliable, but must not be presumed infallible and must be contrasted, if appropriate, with other sources before adopting any state of opinion or decision on the part of the user. All opinions, measures or actions of investment or of any other type that the user adopts, will do at his/her own risk only.

The FUNDACIÓ MSD assumes no responsibility arising from the user's use of the contents of the website, and reserves the right to modify, replace, update, renew, prevent access, interrupt, block, temporarily suspend or Definitively cancel any service, provision of information or any other content, whether in relation to a particular user or in general.

Unless expressly stated otherwise in each case, the FUNDACIÓ MSD does not intervene, participate or assume any guarantee in relation to the services or products offered by third-party vendors accessible through advertising links.