Our videos

01/19/2019-video of our doll, the Ivet.

The images that we teach are very beautiful, the beginning of a life it always is, but we also want to reflect the reality, etc. the disease progresses and has no brakes. The only hope, is the progress in the investigation. (build Laia Grau – Kronostempsxaprendre)

Thanks Laia, for your great help.

Live from TV-Canal Terrassa – 01/07/2019

Live interview to TV channel TV-Canal Terrassa, to the program Connecti. Cat, with issuance in all the local TV!!!

link — — > LIVE INTERVIEW TV-CHANNEL TERRASSA

Short Film #IVETunacuraMSD – 12/16/2018

Produced by: Jan Ballbè, Ivet’s brother

Edited by: Arnau Sors, Jan’s friend.

link — — > #IVETunacuraMSD

11/28/2018 – Interview prior to the presentation of the “FUNDACIO MSD”, at the Central Library in Terrassa.

link — > VIDEO EVENT PRESENTATION.

Thanks Moviedron, Albert for this great memory!!

The “Fundacio MSD – Multiple Deficit of Sulfactasa” aims to promote and support the developments in the scientific research of the disease, MSD.

Help us to make this possible!