Research in progress

There are currently several investigations to get a cure of the disease, MSD.

Four years ago was diagnosed with Dylan, a child born in Ireland, the son of Alan Finglas and Michelle Finglas. And thanks to the will of this family were to move forward with the MSD Action Foundation. It was the first Foundation for this disease and are funding major projects.

Luckily for all children and families, a year later, in United States, the parents of the Willow, Thomas Cannan and Amber Olsen promoted the Constitution of United MSD Foundation. The courage of this family and the desire to beat the disease have done much for MSD.

A year later, approximately, is Fundación Cure MSD in Argentina where the parents of the Alma also represent an important part of these searches.

Now we have touched us, what we want is to help with the investigations that are driving these foundations.

Specifically, it is investing in (see this link): MSD ACTION FOUNDATION-RESEARCH

ible. This project has been funded in part by MSD ACTION FOUNDATION-Ireland and in part by public funds from Germany.

SEARCH FOR A DRUG TO STOP THE DEGENERATIVE EFFECTS

University Medical Center GoettingenChildren’s Hospital

Dr. Lars Schlotava and his team, focuses its efforts on this project in the short term is the most hopeful because they want to get stop the degenerative effects of the disease.

This work is complex, but they have some very good results and are already in a very advanced stage. For more information, please visit the link below.: identification and development GAD molecules

GENE THERAPY

Texas Medical Center (TMC) – Dr. Steve Gray

The gene therapy, it is the technique that locates the defective gene and replaces it with the correct gene in order to cure genetic diseases, such as MSD.

• First phase with mice, completed with success
• Second phase with rats, completed with success

• Pending:
  • FDA approval – delivered and waiting for approval
  • Creating vector suitable for children
  • Clinical analysis with children

UNITED MSD FOUNDATION – RESEARCH

All investigations are provided and all are important. From Spain we want to collaborate in doing research for the advancement of Science together with the rest of the foundations, because the strength of all will make it possible to reach a wonderful goal.

The MSD Foundation – Multiple Deficit of Sulfactasa

aims to promote and support the developments in the scientific research of the disease, MSD.