Privacy Policy

FUNDACIO MSD-Dèficit Multiple Sulfactasa informs users of the website about their policy regarding the treatment and protection of personal data of users and customers who may be collected by the navigation or hiring of services to Through your website.

In this sense, FUNDACIO MSD-Dèficit Multiple of Sulfactasa guarantees compliance with the current regulations regarding the protection of personal data, reflected in the Organic Law 15 ⁄ 1999, of 13 December, Protection of Personal Data (LOPD), and Royal Decree 1720 ⁄ 2007, of 21 December, known as the Regulation of development of the LOPD. It also Complies with Regulation (EU) 2016 ⁄ 679 of the European Parliament and of the Council of 27 April 2016 on the Protection of Natural persons (RGPD).

The use of this website implies the acceptance of this privacy policy.

Identity of the person responsible

  • Owner: FUNDACIO MSD-Dèficit Multiple Sulfactasa
  • NIF/CIF: G67305821
  • Address: C/Sant Marc, 116-08224 Terrassa, Barcelona-Spain.
  • Email electró

Principles that we will apply to your personal information

In the treatment of your personal data, we will apply the following principles that conform to the requirements of the new European Data Protection Regulation:

  • Principle of lawfulness, loyalty and transparency: We will Always require your consent to treat your personal data for one or more specific purposes that we will inform you beforehand with absolute transparency.
  • Data minimization Principle: We will Only ask for strictly necessary data in relation to the purposes for which we require them. Possible minimums.
  • Principle of limitation of the term of conservation: The data will be kept for no longer than necessary for the purposes of the treatment, according to the purpose, we will inform you of the corresponding period of conservation, in the case of subscriptions, We will periodically review our lists and remove those inactive records for a considerable amount of time.
  • Principle of integrity and confidentiality: Your data will be treated in such a way as to ensure adequate security of personal data and to guarantee confidentiality. You Should know that we take all necessary precautions to avoid unauthorized access or misuse of the data of our users by third parties.

How have we obtained your data?

So that you can navigate through, you do not need to provide any personal information.

The cases in which if you give me your data are the following:

What are your rights when you provide us with your data?

Interested persons have the right to:

  • Request access to personal data relating to the person concerned.
  • Request rectification or suppression.
  • Request the limitation of your treatment.
  • Oppose treatment.
  • Data Portability.

The exercise of these rights is personal and must therefore be exercised directly by the person concerned, request directly to FUNDACIO MSD-Dèficit Multiple Sulfactasa, which means that any client, subscriber or collaborator who has provided me Your data at some point, you can go to FUNDACIO MSD-Dèficit Multiple Sulfactasa and ask me information on the data I have stored and how I have obtained (right of access), can request the rectification of the same, oppose the treatment, which Limit your use or in your case the cancellation of that data in my files.

You Can send any such request and exercise your rights of access, rectification, cancellation and opposition via email by sending an email to along with the valid proof in law as a photocopy of the D.N.I. or equivalent.

Interested parties will also be entitled to effective judicial guardianship and to file a complaint with the supervisory authority, in this case, the Spanish Data Protection Agency, if they consider that the treatment of personal data concerning it violates the Regulation.

For What purpose do we treat your personal data?

When a user connects to to send an email to the holder, subscribe or make a contract, is providing information of a personal nature that is responsible FUNDACIO MSD-Dèficit Multiple Sulfactasa. This information may include personal data such as your IP address, name, physical address, email address, phone number, and other information. By Providing this information, the user gives his/her consent so that his/her information is collected, used, managed and stored by Digital- Environment, only as described in the Legal Notice and in this Policy of Privacy.

In There are different systems of capture of personal information and we treat the information that we facilitate the people interested with the following end for each system of capture (forms):

There Are Other purposes by which we treat your personal data:

  • To ensure compliance with the terms of use and applicable law. This can include the development of tools and algorithms that help this web to guarantee the confidentiality of the personal data it collects.
  • To support and improve the services offered by this website.
  • It Also collects other non-identifying data that are obtained by some cookies that are downloaded to the user's computer when browsing this web, and detailed in the policy of cookies.
  • To manage social networks. FUNDACIO MSD-Dèficit Multiple Sulfactasa may have a presence in social networks. The treatment of the data that is carried out of the people who become followers in the social networks of the official pages of FUNDACIO MSD-Dèficit Multiple of Sulfactasa, will be governed by this section. As Well as by those conditions of use, privacy policies and access regulations that belong to the social network that proceed in each case and previously accepted by the user. FUNDACIO MSD-Dèficit Multiple Sulfactasa will treat your data with the purposes of properly administering your presence in the social network, reporting activities, products or services FUNDACIO MSD-Dèficit Multiple Sulfactasa. As Well as for any other purpose that the norms of the social networks allow. In no case will I use the profiles of followers in social networks to send advertising in an individual way.

How we protect your data

This Web site is hosted in Digital Environment- The security of your data is guaranteed, because they take all the necessary security measures for it. You Can Check your privacy policy for more information.

To Protect your personal information, we take reasonable precautions and follow the industry's best practices to ensure that there is no loss of misuse, misuse, access, disclosure, alteration or destruction thereof.

FUNDACIO MSD-Dèficit Multiple Sulfactasa informs users that their personal data will not be transferred to third organizations, except that such transfer of data is covered by a legal obligation or when the provision of a service implies the Need for a contractual relationship with a treatment manager. In the latter case, only the transfer of data to the third party will be carried out when FUNDACIO MSD-Dèficit Multiple Sulfactasa has the express consent of the user.

However, in some cases collaborations can be made with other professionals, in such cases, consent will be required to users informing about the partner's identity and the purpose of the collaboration. It will always be done with the strictest safety standards.

Content of other Web sites

Items on this site may include embedded content (e.g., videos, images, articles, etc.). The embedded content of other Web sites behaves exactly the same way as if the visitor had visited the other website.

These Web sites can collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with embedded content if you have an account and are connected to that website.


I inform you that for the site to work properly you need to use cookies, which is information that is stored in your browser to facilitate browsing.

You Can Check the cookie policy here.

Legitimation for the treatment of your data

The legal basis for the treatment of your data is: consent.

To Contact or make comments on this website it is necessary to accept this privacy policy.

Data Category

  • The categories of data being treated are identifying data.
  • Categories of specially protected data are Not covered.

How long will we keep your data?

The personal Data provided shall be retained until the request for deletion by the person concerned.

Which recipients will your data be communicated To?

Web Browsing

Browsing through can collect unidentifiable data, which may include IP addresses, geographic location (approximately), a record of how services and sites are used, and other data that cannot be used to Identify the user. Non-identifying data are also related to your browsing habits through third party services.

These websites Use the following third-party Analysis Services:

We use this information to analyze trends, manage the site, track users ' movements around the site, and gather demographic information about our user base as a whole.

Accuracy and veracity of the data

As a user, you are solely responsible for the veracity and correctness of the data you refer to FUNDACIO MSD-Dèficit Multiple Sulfactasa exonerating FUNDACIO MSD-Dèficit Multiple Sulfactasa of any liability in this regard.

Users guarantee and respond, in any case, of the accuracy, validity and authenticity of the personal data provided, and undertake to keep them properly updated. The user agrees to provide complete and correct information in the contact or subscription form.

Acceptance and consent

The user declares to have been informed of the conditions on protection of personal data, accepting and consenting the treatment of the same by FUNDACIO MSD-Dèficit Multiple of Sulfactasa in the form and for the purposes indicated in this Privacy Policy.


At all times, users who want to access their data, rectify or cancel them can send an email to and I will explain how to exercise their rights of opposition, access and information, rectification, cancellation of their data and revocation of Your authorization.

This does not include any data that we are obliged to retain for administrative, legal or security purposes.

Changes in the Privacy policy

FUNDACIO MSD-Dèficit Multiple Sulfactasa reserves the right to modify this policy to adapt it to new legislation or jurisprudence, as well as to industry practices. In such cases, FUNDACIO MSD-Dèficit Multiple Sulfactasa will announce in this page the changes introduced with reasonable advance to their implementation.